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Worldwide Resources for People with Incontinence and Their Caregivers

The following patient support and professional organizations have an expressed interest in helping people with incontinence. They are listed alphabetically by country.

AUSTRALIA

Continence Foundation of Australia
Level 1
30-32 Sydney Road
Brunswick VIC 3056
Website: www.continence.org.au
Email: info@continence.org.au
Telephone: (61) 03 9347 2522

AUSTRIA

Medizinische Gesellschaft fur Inkontinenhilfe Osterreich
Speckbacherstrasse 1 A06292
Innsbruck
Tel:(43) 512 58 38 03
Website: www.inkontinenz.at
Email: kontinenz@telering.at

BELGIUM

U-Control vzw (Belgian Association for Incontinence)
Leopoldstraat 24
B-30000 Leuven
Tel:(32) 8161 6455/(32) 38213047

Urobel vzw
De Pintelaan 185
BE-9000 Ghent
Tel:(32) 09 240 27 65
Website: www.urobel.be

BRAZIL

Brazilian Foundation for Continence Promotion
Email:seabrarios@uol.com.br

CANADA

Canadian Continence Association
P.O. Box 417
Peterborough, Ontario
K9J 6Z3
Tel: (705)750-4600
Website: www.canadiancontinence.ca/index.html
Email: help@canadiancontinence.ca

COLUMBIA

Sociedad Columbiana de Urologia
Calle 93 No. 14-20
Oficina 410, Edificio Centro 93
Torre Sur
Tel: (571) 218-6700 ext. 104
Website: www.scu.org.co/
Email: scolurol@scu.org.co

THE CZECH REPUBLIC

Inco Forum
Česká společnost podpory zdraví
Fakultní Thomayerova nemocnice s poliklinikou
Vídeňská 800
140 59 Praha 4
Telephone: (420) 261 083 186
Website: www.incoforum.cz/
Email: kucerova@cspz.cz

DENMARK

Kontinensforeningen (The Danish Association of Incontinent People)
Vester Farimagsgade 6, 1. sal - kontor 1029
1606 Copenhagen V
Telephone: (45) 3332 5274
Website: www.kontinens.dk/
Email: info@kontinens.dk

FINLAND

Kontinessiklubi (Finnish Continence Club)
Contact: pentti.kiilholma@tyks.fi for details

FRANCE

Association d’Aide aux Personnes Incontinentes
5, Avenue du Marechal Juin
92100 BOULOGNE
Telephone: (33) 01 46 99 18 99
Email: aapi@9online.fr

GERMANY

Deutsche Kontinenz Gesellschaft e.V.
Friederich-Ebert-Strasse 124
34119 Kassel
Tel: (49) 561 78 06 04
Website: www.kontinenz-gesellschaft.de/

Selbsthilfeverband Inkontinenz e.V.
Website:www.selbsthilfeverband-inkontinenz.org/svi_suite/svisuite/index.php

HONG KONG

Hong Kong Continence Society
c/o Dept. of Medicine and Geriatrics United Christian Hospital
130 Hip Wo Street, Kwun Tong
Kowloon
Tel: (852) 2598 4988
Website: www.hkcs.hk
Email: postmaster@hkcs.hk

HUNGARY

Inko Forum
Levelezeski cim
Budapest
Pf 701/153,1399
Tel: (36) 06 80 730 007
Website: www.inkoforum.hu (currently not available)

INDIA

c/o Bangalore Kidney Foundation
CA6, 11th Cross, 15th Main
Padmanabhanagar
Bangalore 560010
Website: www.indiancontinencefoundation.org/
Email: icfindia@vsnl.net

INDONESIA

Indonesian Continence Society
Sub Dept. of Urogynecology, Dept. of OBGYN Medical Faculty of University
Dr. Cipto Margunkusuma Hospital
Tel: (62) 21 392874 392 3632
Email: urogyn@centrin.net.id

IRAN

Iranian Continence Society
Arghavan bld, No 16
Madaen Alley, Fajr(Jam) Street
Motahari Street
Tehran
Tel: (98) (21) 88492373

ISRAEL

National Center for Continence
Rambam Medical Centre
POB-9602
Haifa 31096
Tel: (972) 485 43197
Email:ig054@hotmail.com

ITALY

Associazione Italiana Donne Medica (AIDM)
Tel: (39) 335 282045 / (39) 065 811390

The Federazion Italiana INCOntinenti (FINCO)
Segreteria/Presidenza
V.le O Flacco
24-70124 Bari
Tel: (39) 080 5093389
Website: www.finco.org

Fondazione Italiana Continenza (The Italian Continence Foundation)
Via del Contarini, 7
201 33 Milano
Email: info@continenza-italia.org

Società Italiana di Urodinamica
Website: www.siud.it/index.php
Email: presidenza@siud.org

JAPAN

Japan Continence Action Society
103 Juri Heim, 1-4-2 Zenpukuji,
Suginami-Ku
Tokyo 1670041
Website: www.jcas.or.jp/
Email: nishimura@jcas.or.jp

KOREA

Korean Continence Foundation
388-1 Dep of Urology Asan Center,
Ulsan University College of Medicine,
(138-736) Pungnap-2dong, Songpa-gu,
Seoul 138-736
Telephone: (82) 2 3010 3735
Website: www.kocon.or.kr/
Email: mschoo@amc.seoul.kr

MALAYSIA

Continence Foundation
c/o University Hospital
Lembah, Pantai
Kuala Lumpur 59100
Tel: (60) 3 7956 4422
Email: lohcs@medicine.med.um.edu.my

MEXICO

Asociación de Enfermedades Uroginecológicas
ACI Mexuci AC
Tel: (52) 53 74 3691

THE NETHERLANDS

Pelvic Floor Netherlands
PO Box 23594
1100EB, Amsterdam
Tel: (31) 206970 304

Pelvic Floor Patients Foundation (SBP)
Stichting Bekkenbodem Patiënten
Stationspleing
3818 LE Amersfoort
Telephone: (31) 900 111999
Website: www.bekkenbodem.net/
Email: info@bekkenbodem.net

Vereniging Nederlandse Incontinentie, Verpleegkundigen (VNIV)
Postbus 1206
3434 CA
Nieugwegien
Tel: (31) 30 606 0035

NEW ZEALAND

New Zealand Continence Association
PO Box 270
Drury 2247
Free Phone HELPLINE 0800 650 659 (in country only)
Website: www.continence.org.nz/
Email: zoe@continence.org.nz

NORWAY

NOFUS (Norwegian Society for Patients with Urologic Diseases)
Øyjordsveien 71
5038 Bergen
Telephone: (31) 900 111999
Website: www.nofus.no/
E-mail: rofonnes@online.no

PHILLIPINES

Continence Foundation of the Philippines
Room 201, #319 Katipunan Road
Loyola Heights, Quezon City 1108
Tel: (63) 2 4333602
Email:dtbolong@skynet.net

POLAND

NTM "Incontinence - To live a Normal Life" (The Polish Continence Organization)
13 Erazma Ciolka St.
01-445 Warsaw
Website: www.ntm.pl/
Email: ntm@ntm.pl

PAN-ARABIAN

Pan Arab Continence Society
4 St. Lewaa Abdel Aziz Ali
Heliopolis
Cairo, Egypt
Fax: (2) 24553443
Website: www.pacsoffice.com/PACS/
Email: info@pacsoffice.com

SINGAPORE

Society for Continence
45 Jalan Pemimpin
Foo Wah Industrial Building #09-20
Singapore 577197
Telephone: (65) 6798 0337
Website: www.sfcs.org.sg/medi_page/site_web_sfcs/common_page.asp
Email: rani.sfcs@pacific.net.sg

SLOVAKIA

Slovakia Inco Forum
P.O.Box 78
850 00 Bratislava
Tel.: +421 2 67 26 73 40
Website: www.inkoforum.sk/
Email: info@inkoforum.sk

SOUTH AFRICA

Continence Association of South Africa (CASA)
Affiliated to Association of Continence Advice
PO Box 6479
Westgate 1734
Tel: (27) 022 475 9700
Helpline: 072 2108769 (in country only)
Email: casa123@absmail.co.za

SPAIN

Asociación Nacional de Ostomizados e Incontinentes (ANOI)
Salvador Giner, 2
46110 Godella, Valencia
Tel: (34)96 390 17 70

SWEDEN

Sinoba
Website: www.sinoba.se/
Email: info@sinoba.se

Swedish Urotherapists
Nordensioldsgatan 10
S-413 09, Goteborg
Tel: (46) 31 50 26 39
Email: birgtha.lindehall@vgregion.se

SWITZERLAND

Scheizerische Gesellschaft fur Blasenschwäche
Gewerbestrasse 12
CH-8132 Egg
Tel: (41) 1 994 74 30
Website: www.inkontinex.ch/
Email: info@inkontinex.ch

TAIWAN

Taiwan Continence Society
Division of Urology, Taipei Veterans General Hospital
201 Sec, 2, Shih-Pai Road
Taipei, Taiwan 112
Tel: (886) 2 2871 1132
Website: www.tcs.org.tw/
Email: msuuf@ms15.hinet.net

TURKEY

Turkish Continence Society
Kontinans Derneği
Bişkek Caddesi
(8.Cadde) No: 75/1
Emek
ANKARA
Tel: 0312 215 85 84
Website: www.kontinansdernegi.org/
Email: info@kontinansdernegi.org

UNITED KINGDOM

Association for Continence Advice (ACA)
Drumcross Hall
Bathgate, West Lothian EH48 4JT
Tel: (44) 0 1506 811077
Website: www.aca.uk.com
Email: aca@fitwise.co.uk

The Cystitis & Overactive Bladder Foundation
Kings Court
17 School Road
Birmingham, B28 8JG
Telephone: (44) 0 121-7020820
Website: www.cobfoundation.org/
Email: info@cobfoundation.org

Dare to Age Well
Website: https://daretoagewell.wordpress.com/

ERIC - Education and Resources for Improving Childhood Continence
Education and Resources for Improving Childhood Continence
36 Old School House, Britannia Road
Kingswood, Bristol BS15 8DB
Helpline: 0845-370-8008
Website: www.eric.org.uk/
Email: info@eric.org.uk

PROMOCON
Burrows House, 10 Priestley Road
Wardley Industrial Estate, Worsley, M28 2LY
Tel: (4) 0161 607 8200
Website: www.disabledliving.co.uk/PromoCon/About
Email: Promocon@disabledliving.co.uk

St. Mark's Hospital
Website: www.stmarkshospital.org.uk/patient-information-leaflets

UNITED STATES OF AMERICA

180 Medical - Scholarship Program 180 Medical, Inc.
5324 W. Reno, Suite A
Oklahoma City, OK 73127
Tel:(1)877 688 2729
Website: www.180medical.com/scholarships

American College of Gastroenterology
Patient Education and Resource Center
6400 Goldsboro Road
Ste. 450
Bethesda, MD 20817
Tel: (1) 301 263 9000
Website: patients.gi.org/gi-health-and-disease/

Antidote - resource for clinical trials information.

Association for Pelvic Organ Proplapse Support (APOP)
8225 State Rd 83,
Mukwonago, Wi 53149
Telephone: (1) 262 642 4338
Website: pelvicorganprolapsesupport.org/

Continence Central
Website: www.continencecentral.org

Diaper Bank Listing for US (this listing is on the Simon Foundation for Continence's website)

Financial Aid for Disabled Students - an oline listing for academic scholarships (for varying levels) for students in the US and Canada

Health Central - Incontinence Network
Website: www.healthcentral.com/incontinence/

Healthy Mature Living Foundation - website created to support and provide resources for people living with accidental bowel leakage (ABL).
Website: www.ablinfo.org

Interstitial Cystitis Association of America (ICA)
100 Park Avenue
Suite 108-A
Rockville, MD 20850
Website: www.ichelp.org
Email: icamail@ichelp.org

National Association for Continence (NAFC)
P.O. Box 1019
Charleston, SC 29402-1019
Phone: (1) 843 377 0900
Website: www.nafc.org/
Email: memberservices@nafc.org

National Institute on Aging (NIA)
Building 31, Room 5C27
31 Center Drive, MSC 2292
Bethesda, MD 20892
Tel: (1) 800 222 2225 (in country only)
TTY: (1) 800 222 4225 (in country only)
Website: www.nia.nih.gov/

National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
Office of Communications & Public Liason
NIDDK, NIH
Building 31, Room 9A06
31 Center Drive, MSC 2560
Bethesda, MD 20892-2560
Tel: (1) 301 496 3583
Website: www.niddk.nih.gov/

Pull-Through Network
2312 Savoy Street
Hoover, AL 35226-1528
Telephone: (1) 205 978 2930
Website: www.PullthruNetwork.org
Email: PTNmail@charter.net

The Simon Foundation for Continence
PO Box 815
Wilmette, IL 60091
Tel: (1) 847 864 3913
Website: www.simonfoundation.org/
Email: info@simonfoundation.org

Society of Urologic Nurses and Associates (SUNA)
East Hollly Avenue
Box 56
Pitman, NJ 08071-0056
Tel: (1) 888 827 7862 (in country only)
Website: www.suna.org/
Email: suna@ajj.com

Underactive Bladder Foundation
P.O. Box 5080
6360 Broad St.
Pittsburgh, PA 15206-9998
Website: www.underactivebladder.org/
Email:info@underactivebladder.org

Urology Care Foundation
1000 Corporate Blvd
Suite 401
Linthicum, MD 21090
Telephone: (1) 410 689 3700
Website: www.urologyhealth.org/
Email: info@urologycarefoundation.org

Us TOO! International Prostate Cancer Survivior Support Groups
5003 Fairview Avenue
Downers Grove, IL 60515
Prostate Cancer Support Helpline: (1) 800 808 7866 (in country only)
Tel: (1) 630 795 1002
Website: www.ustoo.org/
Email: ustoo@ustoo.org

Wound, Ostomy and Continence Nurses Society (WOCN)
15000 Commerce Parkway
Suite C
Mount Laurel, NJ 08054
Tel: (1) 888 224 9626
Website: www.wocn.org/
Email: wocn_info@wocn.org

INTERNATIONAL or MULTINATIONAL

Continence Product Advisor
Website: www.continenceproductadvisor.org

Find a Urogynecologist Tool
Website: www.findurogynecologist.com
E-mail: membership@iuga.org

HealthUnlocked - Incontinence Group Support Community

Our online community

 

Innovating for Continence
Website: www.innovatingforcontinence.org/
Email: info@innovatingforcontinence.org

International Continence Society (ICS)
19 Portland Square
Bristol
Bristol BS2 8SJ
England
Tel: (44) 117 9444881
Website: www.ics.org/
Email: info@ics.org

International Foundation for Functional Gastrointestinal Disorders (IFFGD)
PO Box 170864
Milwaukee, WI 53217-8076
USA
Tel: (1) 414 964 1799
Toll-free: (1) 888 964 2001 (in country only)
Website: www.iffgd.org/
Email: iffgd@iffgd.org

International Painful Bladder Foundation (IPBF)
Burgemeester Le Fèvre de Montignylaan 73
3055 NA Rotterdam
The Netherlands
Tel/fax: (31) 10 4613330
Email: info@painful-bladder.org

Managing Life with Incontinence
Website: www.managinglifewithincontinence.org/
Email: info@managinglifewithincontinence.org

World Council of Enterostomal Therapists
15000 Commerce Parkway
Suite C
Mount Laurel, NJ 08054
USA
Tel: (1) 856 437 0386
Website: www.wcetn.org/
Email: wcet@ahint.com

World Federation of Incontinent Patients (WFIP)
Website: wfip.org/

Please contact us at info@managinglifewithincontinence if you find any errors or omissions in this listing.